Information on . . .

Obtaining Publications

I can recommend two good sources for finding and obtaining research articles related to Fanconi Anemia. From these sites, you can order the articles and have them mailed directly to you. It's not cheap to do it this way, but it sure is convenient.   Otherwise, you could explore two other options. If you live near a major university, you can go to the university's medical library (if they have a medical school) or their technical library (if they don't)  to look up the articles in the journals directly--ask the librarian, they love to help you find information. Second, your hospital may have a center that does research and provides articles free of charge to patients. The only example I know of this is the Emily Center at Phoenix Children's Hospital (if you are a resident of Arizona, you can use the services of the Emily Center at no charge).

Medscape
   Medcape's mission is to provide healthcare professionals with timely medical information. When you get the site, go through the free registration process to setup your username and password. 
   Then, to locate journal articles, enter a search term (e.g., "Fanconi Anemia") in the search box in the top center of the screen. Press enter or click on the little magnifying glass next to the box to begin the search.
   The search results will then be displayed. Note that there are 4 tabs displayed at the top of the search results:

  1. Medscape tab -- shows news articles and clinical content related to the search term -- first tab displayed
  2. MEDLINE tab -- shows journal articles related to the search term -- you're probably most interested in these
  3. Druginfo tab -- shows drugs related to the search term -- can search by drug or disease
  4. Patient info -- articles for patients related to the search time

As mentioned, you're going to find journal articles via the MEDLINE tab.  Click on the article title to bring up more information on the article--often an abstract (but sometimes not).  On this screen, at the top of the information, you will see one or more "$" graphics with the words "Order full text" and perhaps "View online".  To have a paper copy of the full text mailed to you, click on the "$ Order full text" link--a new window will be launched to get your credit card and address information.  If you click on the the "$ View online" link, a new window will come up that is displays the journal's site--how you obtain the article from that point depends on the particular journal (sometimes they are free).  If you check out some prices, you'll see what I mean about them not being cheap--but it is very convenient.

Pubmed
   Enter your search terms (e.g., "Fanconi Anemia") in the search box at the top of the page.  Then press the "Go" button.  Your search results will then be returned.  For the articles of interest, click on the author's names (which are a link) to bring up more information on the article.  From that screen, you can press the "Order" button.  From there, you have to register for the Loansome Document service--which works through a local library in your state--follow the directions from this point.

Acrobat Reader
   You'll encounter many publications that can be viewed in Adobe's Portable Document Format (PDF format), which provides the capability for high resolution documents of professional quality. You need a browser plug-in to view PDF documents.  The plug-in is called "Acrobat Reader" and is distributed for free by Adobe. You can obtain it by clicking on the graphic below:

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Last updated: 08 Feb 2004