Gluten Intolerance

Celiac Disease

Gliadin Sensitivity

 

‘A guy goes into the doctor’s office and says, “Doc!  It hurts when I do this.”  Doc says, “Then don’t do that!”  I always thought that was just a silly “Hee Haw” gag until I studied chronic heath conditions.  So what if there are genes involved  -- it seems to me that usually there is something you are doing to further hurt yourself.’

 

On this page…

Site Disclaimer

Site Directory

Acknowledgements

My Goals

Quick Research Tips

 

 

In this site…

Who, what, why,…

Basic Factors    Links

Glossary    Symptoms 

A Real F.A.Q!

Essays, Tips

Link to Celiac Sites

 

A Favorite Column:

Pease Porridge: What's All This Doctoring Stuff, Anyhow?

 

Contact / Feedback

 

Avionics, Electrical Engineering and Manufacturing (My Employer’s Web Site)

Gluten Intolerance is a fascinating collision between a perfectly good defense against a common virus and a cheap food for the masses.

Author's Update Nov 2005: Thank you for your interest.  I could apologize for the incompleteness of some of the pages, but it is really meant to be an open notebook after all.  There is still a lot of maintenance and new material I want to add as I can steal time from the family…

 

Introduction

“You’re not a doctor – so what the heck do you know.” I used to say to people who would try to inform me about gluten intolerance.  Or I’d say, “You’re a quack.” if the speaker was a doctor.  Now that I have, in spite of all that, finally discovered the source of forty years of nagging health problems, it seems those shoes are on my feet. (so call me Saul…)

The pages in this site are my open notebook of information I have collected and essays I have written as I, a skeptical engineer, finally accepted the theory and began to figure out certain common chronic health problems.  This is the information I needed to convince myself.  I have created this site to help me communicate what I have learned to friends, acquaintances and complete strangers, and to encourage others to study their food and their own health, whether they may be gluten intolerant or not.

I have here some links to Celiac Support Sites.  But I also have here information that has been very useful to me that I didn’t find on those sites – but to learn how to do the diet, please see the Celiac Support Sites.  I hope you have a chance to go over my site.  If there is something here (or missing) that causes you to still doubt that gluten intolerance is real and common, please drop me your reasons by e-mail. 

Disclaimer

The purpose of this website is to provide and share an introduction to the incredibly broad scope of the previously under-recognized health problems of Celiac Disease, gluten intolerance, and gliadin sensitivity.  It does not substitute for competent and informed medical diagnosis and treatment.  I highly recommend anyone with medical conditions to discuss their condition and management with their family physician and appropriate specialists.  I have no responsibility for the accuracy or applicability of information referenced here and I make no representation that any material herein is subject to medical review; rather the intent is that you be encouraged to personally study the referenced medical studies.  Don’t take what I have found to your doctor – take what YOU find!

Site Directory:

Just how common is it, anyway?

A who, what, where, why, when, and how of Celiac Disease and Gluten Intolerance

The Basic Factors of Gluten Sensitivity and Celiac Disease

A Glossary of common but confusing and unevenly used terms

Annotated List of Symptoms and Health Problems

F.A.Q: REAL Frequently Asked Questions about gluten!

Essays, Tips, and Advice regarding diagnosis and treatment of Celiac Disease

Links to Neurological Studies, other Research Articles, and Celiac Web Sites

Acknowledgements

I thank my wife for her patience with my experimental diets and for her telling me when I finally found the right one. (“Why are you buying all those gluten-free cookbooks?” I asked.  She answered, “Because you are much better to live with, now!”)

I am indebted to Craig Brown for his friendship, guidance, and experience with Celiac Sprue, as well as his assurances that I’m not crazy, very.

I thank Bob Pease of National Semiconductor for certain inspirations to educating myself in my own health and for encouragement in making this web site.

My Goals

How can one, in a single conversation, hope to discuss the scope of gluten intolerance, gliadin sensitivity, and Celiac Sprue?  How can one picture the world’s most heavily consumed food, a veritable symbol of health and plenty, as the world’s least tolerated grain? 

There are three main points I hope to communicate with my gluten web pages and links:

First, Gluten Intolerance has been assumed by doctors to be rare, but it has been recently proven to be common.  This fact significantly changes what we thought we knew about the relationships between gluten and many common chronic health problems.

Second, Gluten Intolerance does have many symptoms, most of which don’t obviously involve the gut.  Gluten is likely to affect other parts of the body first, often the brain and nervous system.  Sometimes, such injury can go on for a long time before it becomes very noticeable.

Third, if you are truly reacting to gluten, conventional serum tests and biopsies can be more likely wrong than right, especially earlier in your life before you have strong symptoms and real damage is done.

Quick Gluten Research Tips

·        In searching for information of relationships between Celiac Disease, Gluten Intolerance, and other symptoms and conditions, try including forms of “gliadin antibodies”, “anti gliadin”, and “antigliadin” in your Internet search criteria.  This will help screen out millions of commercial sites and help narrow your search to recent studies.  Try such searches as ‘diabetes gliadin antibodies’ and ‘gliadin ataxia’.

·        When you find an Internet article that interests you, search the Internet for the titles and authors of research papers referenced by that article.  This is a good way to find other web sites that reference the same papers and that could also match your particular interests.

·        When looking at Celiac web sites, if you see any name of condition you don’t recognize, you ought to search the Internet to learn about it – you may be surprised what you learn about yourself or relatives.  Too often, medical papers use the most technical terms for conditions that have common names.

 

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